It started just before Christmas time, and what I was hoping was just a stage, is not getting better. If anything, his sensory intolerance is getting more pronounced. Mornings are a battle: to get him out of bed, make sure he has had breakfast, getting dressed and then getting out of the door. He categorically refuses to be in the same room as his younger brother. As soon as he comes home after school, Sash shoots up the stairs to the attic, to avoid been with his sibling even for an extra second.
It's very sad. Just today, when we were coming back from a visit to the Cogges manor farm and met a friend on the way home, Eddie said: "Sasha doesn't want to be with me". I need to remind myself how gentle Sasha used to be with Eddie, how nicely they played and laughed together. I look at the older photos, and No, I didn't imagine that brotherly love and affection.
This is one of my favourite photos, when Sasha hugged Eddie. His smile is so beautiful.
Or this one, when they jumped on the bed, wearing matching pyjamas, and laughed their socks off
But then things have changed. We don't know what has caused this intolerance... As Sash is non verbal, he cannot explain to us why he avoids his younger brother. And it breaks my heart...
On top of that, the meds I have been taking last year, made me gain quite a bit of weight. And though I stopped taking them, I cannot seem to shift the gained pounds.
A dear friend of mine who's been ailing quite a while, died over a week ago, and I blame myself for not visiting her often enough in the last year. I saw her just two days before she died in her sleep, but I should have done more, despite my own problems.
Then there's these depressing elections...
My blog has been my salvation and a creative outlet, when I'm feeling blue. In a way, it is my escapism, my little corner of the universe, where the world is a tiny bit brighter. There are days when I feel like I had enough, and maybe I should close down the whole shebang. But then I think I will miss it too much.
I have been so much absorbed in my own issues and problems that I have totally missed all the awards and nominations.
Imagine my surprise when I received a tweet yesterday that I was among those nominated for the Best Writer category in 2015 MADS.
I am most grateful to whoever thought of me as the Best Writer. I am deeply touched, as I certainly don't think of myself as being a writer, especially the best.
Thank you for reading my blog! Without you, my readers, I wouldn't be able to go on.
I'll raise a cup of tea and share a big cake with you!
Congratulations Galina, a well deserved nomination. Your blog posts are always thoughtful and you share not only your food and recipes but your home and your life. Puberty is a very difficult time for all boys, my eldest son was a chatty happy boy whose chatter turned to grunts in puberty. I regained him as he came out the other end, I can only imagine how much more difficult it would be with autism. Hang in there, there's not a lot else you can do. Good luck with the MADS.
ReplyDeleteThank you Janice! I do hope that we'll reach some sort of equilibrium with Sasha.
DeleteWoohoo well done, very well deserved ! I was going to say the same as Janice. Sophie is now 13 and doesn't want to spend time with her younger siblings any more - she spends most of her time shut up in her room, listening to music, reading or on facebook with her friends. I'm hoping it's just a phase but it'll last a while yet ... then it'll be Juliette's turn ! It must be heartbreaking not to be able to discuss with Sasha what's going on in his head but I think it's all part of being a teen, with or without autism xxx
ReplyDeleteThank you Cheryl! I realise that puberty is tough for any teen.
DeleteCongratulations sweetie, you deserve it! I hope things get better as the year goes on, try to take some moments for yourself and look after you too. Lx
ReplyDeleteThank you Leta! I'll raise a cup to that!
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