Sunday 19 January 2020

Photo diary: week 3, project 366

I'd like to say something deep and profound at the beginning of my weekly post, but my brain doesn't co-operate.
Last week we were reading a wonderful story called A Factory Made Boy by Christine Nostlinger. The main character of the book, a boy called Conrad, is made at the factory and posted to his new parents in a big tin. It's so quirky but very sweet, with endearing characters. It's also amazingly feminist and modern, if you think that it was published in 1976.
While we were shopping on Sunday, Eddie pretended that he's on offer, asking me to buy him. He said he's a real bargain. And that's how we rock.

Chez Maximka

On Monday we walked through the fields, which later in the week got flooded yet again. Not surprising really, given the amount of rain we had.

Chez Maximka, winter in the UK

That evening I had a surprise delivery, with tropical foods. This is a hamper I won after Christmas on Insta. You had to say what you were grateful for. I said that on Christmas day I wasn't planning on cooking anything special, as it was just two of us, and my son doesn't eat any Christmas food. I would have been happy with cheese and crackers and fruit. But my friends brought me a big hot plate - a whole Christmas dinner, with all the trimmings. And they also brought a delicious brownie with cream. So, I said I was grateful for having kind friends who care about me.
When I told Eddie how I won, he said it was a very sad story. Now I wonder if I have joined the ranks of people who post sob stories to try to win prizes. It wasn't meant to be a sob story, it was such a lovely thing really, and rather uplifting, I thought. This kind gesture of my friends truly brightened my Christmas.


Chez Maximka

On Wednesday morning we visited one of possible respite centres for Sasha. He's turning 18 soon, and sadly the place where he stays overnight twice a month is only available for up to 18, and now we have a huge issue of finding a new place. There are hardly any choices in the county. 

We visited the local one, in town. It's smaller than a place where he goes currently which wouldn't be too bad, but there is just not enough space. The dining room and sitting room are quite small, there is no play area (for obvious reason, as it's for grown-ups), the garden is tiny and has a table and benches, and nothing else. My worry is that Sash would be bored to death there, and ultimately he needs to enjoy a place where he would stay.
There are two more places to check out, both at a distance. One would take an hour and a half to travel by bus, another one we'd need to go to Oxford, take a train, then a taxi etc.

There is so much to do and organise in the next few months: we need to apply for the power of attorney, try to find a future college placement if possible for after 19, when the current school will come to an end, explore different respite options. So many worries.

I only took photos of the respite place that day, so here is a picture from the day before, taken in UE Roasters café.

Chez Maximka

Having helped Sash to get on the school transport early in the morning, I saw the crescent, and the bird looking in its direction, as if watching the Moon.

Chez Maximka

Friday snap - a shadow selfie, taken in the hall by the mirror.

Chez Maximka


I started the week with a photo of Eddie, and ending it with another one. It's not because I don't take photos of Sasha, but I feel reluctant posting his photos. Eddie gives his consent for now, who knows how he would feel about it when he is a teen.
Yesterday we walked all the way to McDonald's, which is on the outskirts of town. On the way back we stopped at the playground, which was so muddy, our boots looked awful afterwards.
Edgars Limited never ceases to amuse us, simple souls.

Chez Maximka






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28 comments:

  1. Ahh I know what you mean about the photos - my kids aren't at all keen about me posting pics of them any more, especially if they're being silly ! So much stress over what to do with Sash - I hope you find a solution that appeals to him and offers you some respite too. A lovely win - I don't think it was a sad story, not in the way people post fake sad stories anyway ! Well done ! xx

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    1. Thank you, Cheryl, soon it will only be landscapes and selfies for us. :)

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  2. My previous comment didn't go through. :(

    I was saying that it is to be admired your determination to ask for his permission to show pictures of him on the blog. I think all parents should respect their children's wishes and privacy. All the pictures look great, but I think I like the first one the most.

    It's a shame the situation with Sasha is complicated, but I hope you'll solve it as easily as possible. Sending lots of hugs. xx

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    1. Thank you, Anca, we did have a conversation if he feels I should not post any more pics of him, I'll stop, but so far he kindly agrees, though he looks at what I plan to post first.

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  3. hehehe! Eddie really is cute. What a bargain he is.
    What a lovely story about the Christmas dinner. It's nice to have friends like that and the hamper looks fab!
    Good luck with finding a new place for Sasha. x

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  4. I do hope you find somewhere suitable for Sasha - it's frustrating that there aren't more places as there's clearly a need.

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    1. Thank you, Erica, finding the right place will be tricky, especially that we don't have much time left.

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  5. Those photos of Eddie made me smile along with him saying that he was a bargain. Good luck with finding a new respite centre for Sasha. How lovely of your friends to bring you a Christmas dinner. I wouldn't have thought of it as a sob story at all - just a lovely story of people being kind, and as you say, uplifting rather than sad. That hamper looks interesting, well done on winning it. #project366

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    1. Thank you, Louise, glad you think it doesn't sound like a sob story, I sort of started doubting myself.

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  6. It must be a difficult time for you trying to work out what to do for Sasha for the future. I hope you can come up with a solution that suits you all. That is a lovely story about the Christmas dinner. It's interesting that Eddie saw it as a sad story - I didn't interpret it in that way either.

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    1. Thank you, Sarah! It did amuse me that Eddie thought of it as sad.

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  7. The next step with respite sounds like a nightmare for you with the logistics of it all, such a shame that the local one isn't a better size for him. Love your shadow photo, very artistic #366

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    1. Thank you, Mary, we went to meet with the solicitor yesterday, and it doesn't look like an easy process to begin applying for the power of attorney, so much hassle.

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  8. We take photos of our daughter who is now 31, she can't give consent but she is our child still and we don't want people to think we don't want to post pictures of her. i don't think your christmas day is a sob story, i think it's a lovely story of kindness from a friend

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    1. Thank you, Suzanne, I think the respectful photos of our children are fine.

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  9. No wondered you are worried about Sasha, I would be as well.
    I am like you don't like sob stories but we volunteered on Christmas day as we could not afford to eat anything nice that day and would have had soup and crusty bread, so a win win all round.
    Eddie looks like a bargain.

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    1. Thank you, Elaine, you were so kind to volunteer on Christmas day, and how lovely that you could shared a festive meal.

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  10. Well done on the win. Hope you find somewhere suitable that you all like for Sasha's respite care. Must be a worry at all the change he'll be going through

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    1. Thank you, Emma, we're now planning to visit a couple of the other possible places for Sasha.

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  11. Congrats on the win, time to get cooking! I ask if I can share photos of the kids and also get my sister's consent if my niece and nephew are in the photo #project366

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    1. Thank you, Laura, I think that's the right way re photos.

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  12. Oh that hamper of tropical foods looks good..well done on the win!

    Hope you find somewhere suitable for Sasha, must be such a worry.

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    1. Thank you Fozia! I haven't done anything yet with the tropical foods, but bookmarked a couple of recipes in the book which I want to try first.

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  13. Hhaahahah cute Eddie! What a lovely Christmas jesture from your friends and from Tropical. I hope you find a good place for your son

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  14. Ha ha that first photo of Eddie made me laugh. I think you totally did the right thing of sharing what your friends did for you at the Christmas meal that is such a lovely thing to do. I hope you manage to get all the things sorted for Sasha that you need to. I hope the other places are more suitable for him x

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  15. Sounds like a busy week, and I love the photo of your son pretending he is a bargain in a shop! :)

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  16. I know what you mean about the photos. My oldest doesn't like being in them at all. That is a lovely Christmas gesture from your friends. xx

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