Showing posts with label Naoki Higashida. Show all posts
Showing posts with label Naoki Higashida. Show all posts

Saturday, 17 August 2013

Sasha's selfies: a glimpse in the silent world of autism

The other day I mentioned the splendid book "The reason I jump" written by a Japanese young man with autism Naoki Higashida and introduced & translated by David Mitchell. This book should be on the must-read list of books for all professionals working with autistic children. I thought I knew enough about autism, having read extensively on the subject and from a personal experience of having a son on the spectrum but in many ways this book was an introduction to a different perception of life.

It is a fascinating account of what it is to live with a challenging condition.

One of the questions Naoki asks himself is "When you look at something, what do you see first?" Reading his answer for me is like reading the mind of my own son, who is non verbal and cannot tell me, but I feel it is very close to how he perceives the world:
"When you see an object, it seems that you see it as an entire thing first, and only afterwards do its details follow on. But for people wit autism, the details jump straight out at us first of all, and then only gradually, detail by detail, does the whole image sort of float up into focus"

Self-portrait


"When a colour is vivid or a shape is eye-catching, then that's the detail that claims our attention, and then our hearts kind of drown in it, and we can't concentrate on anything else".
That's exactly how my son Sasha sees the world around him, the details take over and claim his attention.

The whiteness of the ceiling and corners (cottage in Cornwall)

Patterns and shapes at home



"Every single thing has its own unique beauty. People with autism get to cherish this beauty, as if it's a kind of blessing given to us". How very true, and how poetic. I do believe it is a blessing and a talent to see the beauty in mundane things. We are so often in a hurry that we don't notice that the most simple things could be interesting enough to stop for a second and look at them.

A fluffy rug in the bathroom is a worthy object of attention (cottage in Cornwall)


Unlike most of the neuro-typical teenagers and pre-teens, Sasha is totally unaware of the celebrity culture and its trends, so I cannot say he has been influenced by the latest craze of selfies created daily by the minor celebs and big-time stars. He simply tries to figure out what and who he is. His ipad is his best friend and a tool of communication. He doesn't share his photos on Instagram, he doesn't even show them to us. It is for us to discover which new images appear on his ipad. It is not the vanity that makes him take the numerous portraits of himself. He is rewriting himself, it is his way of talking to us about what he feels and thinks.

These are all recent selfies taken during our week in Cornwall


Who am I? What am I? Can you understand what's going on inside my mind?



I wasn't aware that Sasha was taking my photos (cottage in Cornwall)

I have written about Sasha's photos and how the discovery of the huge amount of his photos on the ipad allowed me to have a glimpse in his inner world (see my post The fragmented world of Sasha). There are hundreds of photos taken by Sasha, mostly of the everyday objects, an inanimate world. He would take a dozen of images of an object, as if saying: "This is a cup. Look at it! Have you actually looked at it the way I do?"
His images speak to me of an insightful inquisitive mind, a kind soul with an appreciative eye for beauty.
A glimpse in the silent world of autism.


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Thursday, 15 August 2013

Swimming with the dolphins: one can dream

I have recently read a truly remarkable book "The reason I jump" written by Naoki Higashida who is severly autistic. Naoki gives an insight of what it is to be autisic. One of the chapters in the book answers the question "Why do you like being in the water?" Naoki gives a poetic explanation:
"In the water it's so quiet and I'm so free and happy there. Nobody hassles us in the water, and it's as if we've got all the time in the world...in the water we can really be at one with the pulse of time...
People with autism have no freedom. The reason is that we are a different kind of human, born with primeval senses. We are outside the normal flow of time, we can't express ourselves, and our bodies are hurtling us through life. If only we could go back to that distant watery past - then we'd be able to live as contentedly and as freely as you lot!"
As every chapter is exploring the inside world of an autistic person, I draw parallels with my own son, 11-year-old Sasha who has autsim. He is at his happiest by the sea, and I do believe he feels at home there, he is not scared of the waves, he is enthralled by its vastness.



Sasha worshipping the sea in Cornwall


For many years I have been toying with an idea of taking Sasha to Florida to swim with the dolphins.

I do not believe in miracle cures, and do not imagine my son would suddenly start to speak, having encountered the dolphins. But he loves the sea so much, that I believe swimming with the dolphins would provide him with the unforgettable, one-in-a-lifetime experience. Bonding with a big air-breathing mammal will definitely be an emotional experience. In the past, when we took Sasha to the London Aquarium, he was happy to spend hours watching the fish (while I was yawning with boredom). He seemed to be fascinated by the slow motion and the shapes in the water. This kind of experience is a sensory one for him, he is calm and happy.

BritMums' recent question: "What would you do if you won the lottery (specifically £20,000)?", made me think that if I were lucky to win £20,000, I would book a family trip to Key Largo, Florida and take my guys swimming with the dolphins.
Yes, £20,000 could be probably wiser spent on the house improvements, my kitchen is very dated, and would need at least £10,000 to improve it by getting rid of all the old-fashioned decor and units.

But you cannot put a price on your child's happiness. I would choose to take them to a magical place where they would be free and content.

Eddie in Cornwall


This post is an entry for BritMums #Spend20K Challenge sponsored by The National Lottery, with more ways to win more money on the new Lotto game. Find out more about new Lotto, which starts in October, here – www.national-lottery.co.uk